You can try the french ORPHANET site:
http://orphanet.infobiogen.fr
or the web sites for patient support organisations for specific disorders.
use google and type lafora: you should get all the patient support groups
for that disease.
Sincerely Yours,
Alain Bouvet
"abdul hai" <ahai11uk at yahoo.co.uk> a écrit dans le message news:
94467c2f.0202131430.69318f9c at posting.google.com...
> Hi the problem is that it is difficult to find information on genetic
> neuro disorders and I have found a few sites
> can tell me about what other sites i should be looking at
> I would be very grateful
> www.nih.gov
> www.climb.org.uk
> www.rarediseases.org