Dejerine Sottas syndrome (DSS) if the more serious form of
Charcot-Marie-Tooth disorder type 1a. Its almost always an hereditary
disorder so consult a clinical geneticist as well. You can also check the
following URLs for more information:
http://www.charcot-marie-tooth.org/http://www.ultranet.com/~smith/CMTnet.html
Rudi
Gerald Spillar heeft geschreven in bericht
<9133-3780E0BA-440 at postoffice-221.iap.bryant.webtv.net>...
>My 11 year old neice was diagnosed last week with dejerine sottas after
>going undiagnosed for 11 years. Thurs. was her
>12th birthday. All of a sudden she seems to be going down hill rapidly.
>We have been on the internet night & day since the diagnosis trying to
>accumulate info. on this disease. Any thing you can add would be
>extremely helpful.
>Thank you Helen Spillar
>
