IUBio

Fw: Saethre-Chotzen Syndrome

Nancy and Frank Rich nasty at THERIVER.COM
Thu Jan 21 00:32:31 EST 1999


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-----Original Message-----
From: Nancy and Frank Rich <nasty at theriver.com>
To: jwes at onramp.net <jwes at onramp.net>
Date: Wednesday, January 20, 1999 10:37 PM
Subject: Saethre-Chotzen Syndrome


Dear Dr. Westmoreland,
=20
    I read your posted message re: a child with Saethre-Chotzen =
Syndrome. My son is Six and a Genesticist Here in Tucson, Az
is pretty positive my son has this too with slight to moderate=20
mental retardation, IQ scores below 70 on the WISC-II test.
My concerns are the same  as yours- Anthony (my son) does not have =
facial disfurgurement but, does have cranial disfigurement.
He also is hyperactive to a point and has a lot of trouble concentrating =
and problems with short and long term memory.
If you have any information  that may be of any assistance to us please =
write us back. As you can imagine we are desperate to get Anthony the =
medical and educational help he needs.=20
Support Groups and any Contacts would be welcome.
=20
=20
                                Sincerely,
=20
=20
                                Nancy Rich
                                nasty at theriver.com
=20

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<DIV><FONT face=3DArial size=3D2><B>-----Original =
Message-----</B><BR><B>From:=20
</B>Nancy and Frank Rich &lt;<A=20
href=3D"mailto:nasty at theriver.com">nasty at theriver.com</A>&gt;<BR><B>To: =
</B><A=20
href=3D"mailto:jwes at onramp.net">jwes at onramp.net</A> &lt;<A=20
href=3D"mailto:jwes at onramp.net">jwes at onramp.net</A>&gt;<BR><B>Date: =
</B>Wednesday,=20
January 20, 1999 10:37 PM<BR><B>Subject: </B>Saethre-Chotzen=20
Syndrome<BR><BR></DIV></FONT>
<DIV><FONT color=3D#000000 size=3D2>Dear Dr. Westmoreland,</FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2></FONT>&nbsp;</DIV>
<DIV><FONT color=3D#000000 size=3D2>&nbsp;&nbsp;&nbsp; I read your =
posted message=20
re: a child with Saethre-Chotzen Syndrome. My son is Six and a =
Genesticist Here=20
in Tucson, Az</FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2>is pretty positive my son has this =
too with=20
slight to moderate </FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2>mental retardation, IQ scores below =
70 on the=20
WISC-II test.</FONT></DIV>
<DIV><FONT size=3D2>My concerns are the same&nbsp; as yours- Anthony (my =
son) does=20
not have facial disfurgurement but, does have cranial=20
disfigurement.</FONT></DIV>
<DIV><FONT size=3D2>He also is hyperactive to a point and has a lot of =
trouble=20
concentrating and problems with short and long term memory.</FONT></DIV>
<DIV><FONT size=3D2>If you have any information&nbsp; that may be of any =

assistance to us please write us back. As you can imagine we are =
desperate to=20
get Anthony the medical and educational help he needs. </FONT></DIV>
<DIV><FONT size=3D2>Support Groups and any Contacts would be =
welcome.</FONT></DIV>
<DIV><FONT size=3D2></FONT>&nbsp;</DIV>
<DIV><FONT size=3D2></FONT>&nbsp;</DIV>
<DIV><FONT=20
size=3D2>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbs=
p;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp=
;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=20
Sincerely,</FONT></DIV>
<DIV><FONT size=3D2></FONT>&nbsp;</DIV>
<DIV><FONT size=3D2></FONT>&nbsp;</DIV>
<DIV><FONT=20
size=3D2>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbs=
p;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp=
;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=20
Nancy Rich</FONT></DIV>
<DIV><FONT=20
size=3D2>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbs=
p;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp=
;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;=20
<A =
href=3D"mailto:nasty at theriver.com">nasty at theriver.com</A></FONT></DIV>
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