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Unexplained memory disorder

F. Frank LeFever flefever at ix.netcom.com
Tue Aug 3 22:34:14 EST 1999


Well, it doesn't sound like you got much of a neuropsych exam.

Four to six hours would be a minimum for a full battery, and a full
battery would be called for if one is really trying not only to decide
if a patient has some kind of a memory disorder but to determine the
type and the severity, and to evaluate its place in the whole context
of other functions, both for differential diagnosis, and for planning
possible treatment.

It would be unethical for anyone involved to discuss your case with me
without your written permission, but if you wish I could forward this
to Barbara for her to judge for herself whether Dr. Owen's efforts were
adequate and met her own standards.

Did Dr. Owen give you a written report?  You have a right to one,
including names of tests and the scores (at least here, in NY State of
the USA).

My apologies.  It was hard getting it out of you, but it appears you
did make a reasonable effort to get proper service.

F. Frank LeFever, Ph.D.
New York Neuropsychology Group





In <37a7233f.2316981 at news.freeserve.co.uk> liam at freeserve.co.uk
(Loonyl) writes: 
>
>On 3 Aug 1999 04:54:06 GMT, flefever at ix.netcom.com(F. Frank LeFever)
>wrote:
> 
>>"After being in touch with Barbara Wilson?" ??  Meaning?  did you
write
>>or speak to her or actually see her?  did she REFER you to Berries??
>>(Dr. Ann Owen? Dr. Barbara Owen?  Dr. Constance Owen? Dr. Dorothy
Owen?
>>Dr. Ellen Owen?  I give up.)
>>
>I sent a letter to Barbara Wilson, asking if she dealt with young
>people with memory disorders.
>She then passed the letter on to Dr German Berrios, who replied by
>letter saying that he would see me, but a doctors referal was needed.
>The doctor refered me to them Dec98, i saw Dr Owen (I've had a look
>through the letters I have, but can't find her first name- sorry),
>from memory she took some personal background details, did a half hour
>memory test onscreen.(yes ONLy memory tests (they displayed random
>words one at a time, and I was asked if I'd already seen them before)
>I was in for 2 hours total.
>No further visits are planned.
>>What did Dr. Owen do?? "SOME memory tests, on words"? (one thing or
>>two?) and "reaction times"?  How many hours were spent on testing?
>>How many tests?  ONLY memory tests and reacion times???
>>
>Cheers
>Liam
>
>>F. LeFever
>>
>>
>>
>>In <37a626eb.5912611 at news.freeserve.co.uk> liams at cwcom.net (Loonyl)
>>writes: 
>>>
>>>
>>>Hi Frank,
>>>I went to see Dr German Berrios (he)
>>>Consultant neuropsychiatrist,
>>>E-mail geb1 at cam.ac.uk (it was his E-mail address Dec 98)
>>>at Addenbrookes hospital, in Cambridge, London, UK.
>>>BUT was seen by his collegue Dr Owen (she).
>>>after being in touch with Barbara Wilson? as you recommended.
>>>
>>> 
>>>On 2 Aug 1999 05:03:19 GMT, flefever at ix.netcom.com(F. Frank LeFever)
>>>wrote:
>>> 
>>>>
>>>>Don't recognize the name. A neuropsychologist? Doon't find him/her
in
>>>>INS directory.  What institution?  What did Dr. Addenbrookes do
>>before
>>>>saying he/she said "we don't know"? ( he? she? we? wish you'd
include
>>>>first names.  For world-famous people, last name suffices; but
>>>>otherwise--?).  "Waiting 6 months for reply" sounds like you
expected
>>>>an answer oon the basis of a letter and/or your webpage. 
>>>It may be easy to jump to that conclusion without knowing the facts,
>>>but it wasn't like that.
>>>I went to see Dr Owen, and she had my medical records from my
Doctor.
>>>She did some memory tests, on words and reaction times.
>>>I think it would be foolish for anyone to make a
diagnosis/impression
>>>of my condition, without the full background.
>>>Anyone doing so from a post on the web, and a link to a website 
>>>would be foolish to say the least.
>>>>Thatis NOT
>>>>what I recommended.  I recommended TTHORGOUGH neuropsych exam, by
>>>>SOMEBODY WITH EXPERTISE not only in memory disorders but in
generral
>>>>clinical neuropsych.
>>>That's not what I thought you meant, I went to one of the specialist
>>>you recommended.
>>>>  In the absence of that, "we don't know" is the
>>>>ONLY answer an ethical neuropsycholigist can give.  NO ethical
>>>>neuropsychologist (or, for that matter, neurologist or
psychiatrist)
>>>>will give you a diagnosis based on a letter, phone call, or
webpage.
>>>>
>>>>In the meantime, that "new syndrome" I allluded too at the end of
my
>>>>reply cannot be ruled out...
>>>>
>>>>Perhaps you're getting the same satisfaction out of having an
>>>>unexplained "memory problem" that someone else in this newsgroup
(wse
>>>>all know who) gets out of having a misunderstood, neglected,
>>censored,
>>>>and unreadable ttheory tthatt explains the brain, the stock market,
>>ans
>>>>several aspects of physics...
>>>>
>>>>Are you yanking our chain?  wasting our time?  did you waste Dr.
>>>>Addenbrooke's time?
>>>>
>>>>F. Frank LeFever, Ph.D.
>>>>New York Neuropsychology Group
>>>>
>>>
>>>>
>>>>
>>>>In <37a4a1a8.1626468 at news.freeserve.co.uk> liams at cwcom.net (Loonyl)
>>>>writes: 
>>>>>
>>>>>Hi frank,
>>>>>this is the same person as before.
>>>>>I did go to the links you mentioned,
>>>>>and was seen by Addenbrookes in London.
>>>>>(waited 6 months for the reply, it was "we don't know", end of
>>story)
>>>>>I have seen a neurologist, neuro-psychiatrist, neuropsychologist
>>>>>psychologist etc but no-one has the answer.
>>>>>I hope I'm not wasting anyones time here, it is a genuine request
>>for
>>>>>help, and i do try any options put forward.
>>>>>Cheers
>>>>>liam
>>>>>
>>>>>On 1 Aug 1999 03:30:29 GMT, flefever at ix.netcom.com(F. Frank
LeFever)
>>>>>wrote:
>>>>> 
>>>>>>
>>>>>>Somehow this name and the complaint soound familiar.
>>>>>>
>>>>>>Did I respond to this a few months ago? a year ago?
>>>>>>
>>>>>>Well, probably you don't remember...
>>>>>>
>>>>>>Anyway, I had asked about location (London?), thatt sort of
thing. 
>>>>Had
>>>>>>some suggestions for evaluation by a good neuropsychologist (I
know
>>>>>>quite a few, not only in US but in a few other countries as
well),
>>>>>>FIRST to evaluate the complaint: does objective testing verify
your
>>>>>>suspicions?  
>>>>>>
>>>>>>THEN: Is it memory exactly, or something else which can present
>>>>itself
>>>>>>as a memory problem?  If memory, what KIND of memory?
>>>>>>
>>>>>>(etc.)
>>>>>>
>>>>>>If this IS the same person, and route I suggested was ignored,
>>>>perhaps
>>>>>>a new syndrome?  e.g. "internet Munchausen"?
>>>>>>
>>>>>>F. Frank LeFever, Ph.D.
>>>>>>New York Neuropsychology Group
>>>>>>
>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>In <379eabb4.4008927 at news.freeserve.net> liams at cwcom.net (Liam)
>>>>writes:
>>>>>>
>>>>>>>
>>>>>>>Hi,
>>>>>>>would you please have a look at
>>>>>>>www.liams.cwc.net/umist.htm
>>>>>>>I am 34 and have severe memory problem, 
>>>>>>>but have no-one is any nearer finding the cause or possible
cure.
>>>>>>>If you have any ideas, will you please send me an E-mail,
>>>>>>>as I'm getting nowhere with this.
>>>>>>>Thanks in adavance
>>>>>>>Liam
>>>>>>>liams at cwcom.net  
>>>>>>
>>>>>
>>>>
>>>
>>>:      ¥____________________________________________¥
>>>:            http://www.mental-health.freeserve.co.uk               
 
>> 
>>>:                 All you ever wanted to know,      
>>>:                  but were too tired to ask        :o)      
>>
>




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