On Wed, 24 Sep 1997 22:15:00 +0200, Someone <Someone at noname.com>
wrote:
> The following was posted on sci.med.vision; perhaps someone here
> can help answer this?
>> Regards,
> Geertje
> --------------------------------------------------------------------
> olehippies wrote:
> >
> > My 10-year old daughter is cortically visually impaired due to an
anoxic
> > event at 6 months of age (near-miss SIDS vs. encephalitis). Her
brain
> > has "rewired" greatly (she's been a patient of Creig Hoyt at UCSF
who
> > is, I understand, the guru of CVI in the States). Suddenly her
> > ophthalmologist says her optic nerve is degenerating. I was
under the
> > impression that the optic nerve has nothing to do with CVI...is
this a
> > secondary problem or what? She also has a wandering eye (lazy
eye??)
> > which the doc says we won't attempt to treat at this point. And
about
> > six months ago, he prescribed glasses due to an unrelated (I
think)
> > myopia in one eye (NOT the "lazy" eye -- the lens on that side is
> > clear).
> >
> > She's been doing so well that I admit I've been remiss in keeping
up
> > with what's been going on in the field lately. Is this all
within the
> > usual realm of CVI? Why is her optic nerve degenerating? Is
there
> > anything we can do to minimize this? Does this mean her vision
might
> > get worse with time? We've been very lucky, as it's my
understanding
> > that most kids with CVI also have CP -- she has some extremely
minor
> > muscle tone problem but not enough to hinder her in any way,
except some
> > slight fine motor control in her hands/wrists/fingers. She is
very
> > slightly developmentally delayed. Again, we consider ourselves
> > extremely lucky.
> >
> > We've recently moved out of county and her prior IEPs have
included
> > Orientation and Mobility with the use of a cane. I don't feel
she needs
> > to be cane-oriented at all -- I feel she should be taught to use
what
> > vision she has (which is quite a lot, actually -- she can sees
stars in
> > the night sky). But perhaps they know something I haven't been
aware of
> > ...will the optic nerve degeneration necessarily lead to
worsening of
> > her vision? Again, she's only 10 but we have to make plans for
her
> > future.
> >
> > Thanks,
> >
> > fw
Check this webpage. It could help.
http://www.his.com/~emerald7/roshi.cmp/roshi.html
