In article ,
"Catherine Twomey" wrote:
>> My 11-year-old daughter, Allison, suffers from a very complex neurological
> disorder. Of greatest concern is the fact that she suffers frequently from
> a cyclical vomiting disorder that involves self-abusive behavior. The
> self-abuse occurs only when she is sick. For several years her neurologist
> has called this a migraine variant, but there is really no conclusive
> evidence, it is just a best guess. We have tried numerous migraine drugs
> and some others, but nothing has helped. At the moment she has been
> vomiting for the past 18 days. This is much longer than usual, but as a
> rule, this occurs every one to two weeks and last anywhere from a few days
> to two weeks.
>> Has anyone ever heard of a case like this or have any suggestion of where I
> might find information?
>> Her only official diagnoses are congenital hypomyelinative
> encephaloneuropathy, and probable Moebius Syndrome. Her last MRI was
> several years ago, but at that time, her corpus collasum indicated that she
> only has about 1/3 the normal amount of myelin. She has almost total
> facial paralysis and cannot blink or close her eyes. Despite this extreme
> myelin deficit, she can walk with help (primarily uses a wheelchair), read,
> and speak in full sentences.
>> I would greatly appreciate any suggestion of where we should look for help.
> Incidentally, she has had the cyclic vomiting since she was about 2 months
> old, so we have been trying to find help for 11 years. I just thought the
> Internet may lead us to help we have not been able to find thus far.
>> Thank you very much.
>> Catherine in Wisconsin
> --
>see2mee at ix.netcom.com
Catherine, The vomiting sounds very much like cyclic vomiting syndrome.
It is a rare disorder most commonly found in children. I suffered from
it as a child. I had episodes once a month that would last for 2 weeks.
