IUBio

Good days/Bad days: Concussion, Lyme, CFS, etc.

F. Frank LeFever flefever at ix.netcom.com
Sat Jan 11 22:43:03 EST 1997


In <5b1slg$r2k at sjx-ixn9.ix.netcom.com> flefever at ix.netcom.com(F. Frank
LeFever) writes: 
>
>In <5am75t$hog at sjx-ixn6.ix.netcom.com> flefever at ix.netcom.com(F. Frank
>LeFever) writes: 
>>
>>In <5a6itq$brn at dfw-ixnews7.ix.netcom.com> flefever at ix.netcom.com(F.
>>Frank LeFever) writes: 
>>>
>>>In <59smh4$jhr at sjx-ixn2.ix.netcom.com> flefever at ix.netcom.com(F.
>Frank
>>>LeFever) writes: 
>>>>
>>>>In <59kucr$lap at sjx-ixn10.ix.netcom.com> flefever at ix.netcom.com(F.
>>>Frank
>>>>LeFever) writes: 
>>>>>
>>>>>I am a neuropsychologist with a stronger "physiological" focus
than
>>>>>most neuropsychologists.  Currently I'm studying variability of
>>>>>symptoms in various disorders: chronic fatigue syndrome, Lyme
>>>disease.
>>>>>fibromyalgia, post-concussion syndrome, MS.
>>>>>
>>>>>I am asking people who experience changes in severity and/or
>pattern
>>>>of
>>>>>symptoms from day to day to monitor changes and report them to me.
>>>>>Most useful would be daily ratings over a period of 1-2 weeks or
>>>more,
>>>>>but it is possible that "one-shot" ratings can contribute
>something.
>>>>>
>>>>>You can report on more than one symptom, but please rate them
>>>>>separately: they may or may not parallel each other in their
>>>>>variability.  My special focus is on "cognitive" symptoms (e.g.
>>>>>concentration, memory) and on "lethargy" (fatigue, inertia,
>>decreased
>>>>>drive, etc.), but believe it is important to see how these relate
>or
>>>>do
>>>>>not relate to others (e.g. pain).
>>>>>
>>>>>For a given day (identified exactly by month and day of month, NOT
>>>day
>>>>>of the week), rate symptom(s) as:
>>>>>          (1) worse, better, or about the same as usual
>>>>>      and (2) worse, better, or about the same as day before.
>>>>>
>>>>>Identify yourself as little or much as you want, but tell me
>>>>>           (1) age
>>>>>           (2) sex
>>>>>           (3) diagnosis
>>>>>           (4) possibly relevant history (if concussion: more than
>>>>>               one?  dates of each?)
>>>>>           (5) geographical location (zip code or phone area code)
>>>>>
>>>>>PLEASE DO NOT POST REPLIES!  IF YOU BELONG TO SUPPORT GROUP,
PLEASE
>>>>>RATE THE DAY BEFORE YOU HEAR WHAT OTHERS SAY!  To be useful,
>ratings
>>>>>must be independent of possible influence of responses by others.
>>>>>
>>>>>email me directly OR, send letter/card to: Monitoring Project
>>>>>                                           Box 199
>>>>>                                           Thiells, NY 10984
>>>>>
>>>>>If you want feedback on results, tell me how you want to get them.
>>>>>
>>>>>F. Frank LeFever, Ph.D.
>>>>>New York Neuropsychology Group
>>>>>
>>>>>        
>>>>
>>>
>>
>




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