We need available info on neuroacanthocitosis, a rare degenerative
neurological disease. Three out of seven family members have been
diagnosed, and we are unable to learn much about treatment & prognosis.
We are interested in contacting anyone who can provide information on
the following:
o recommended therapies (drug and physical)
o physicians currently working with patients
o long-term care requirements
o support group for this or related degenerative diseases
o financial aid options for treatment and long-term care
We live in the state of Maryland. Any responses will be greatly
appreciated. Our E-mail address is turlikm at ix.netcom.com
