I need help..My 5 yr old nephew was just diagnosed with this disease.
If anyone can direct me to info re: treatment, prognosis, research,
etc., I would be eternally grateful.. Especially interested in any NEW
research being done as well as any historical data that can be
provided.. Any sites with files that allow anon. ftp would also be
appreciated. As you can imagine, our family is pretty upset.. Thank
you in advance for all your help!
