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Acoustic Neuroma (Qustions Questions so many questions!)

Grant g.w.naylor at shef.ac.uk
Fri Aug 8 19:51:30 EST 1997

WOW thank God I stumbled across this site as maybe someone out there can
offer me a few answers to my many questions!

Right here's as much information as I can remember.

25 white male who was in excellent health before I had my op as went
5 times a week and also weights 3 times a week ~10 stone about 5 foot
4ish.. Studying for my final year of a Ph.D. in molecular biology and

I had suffered only very slight haring loss and no other symptoms until
November 1996 when my neurosurgeon pointed them out to me.

About six years earlier I had noticed my left ear was not as good as
hearing as my right ear, however the effect was slight and I put it down to
something in my ear had been damaged as I used cotton wool buds and tended
to delve quite deep.  I also suffered from tonsillitis and colds etc. a

Last October (1996) I got myself to see a specialist as I found it
impossible to
hear people in say a noisy club talking in my left ear but perfectly OK in
my right.

He straight away got a scan of my head taken and a large intercranial tumor
in the posteria fossa was identified as causing the problem.  Now when I
say large it must have been as they said I only had about 2-5 months to
live and it must be removed.  The only symptoms I had were slight loss in
sensation of touch on the left side and a reduced gagging response..
Muscles in the left eye were also being affected.  Which meant it had been
growing for 8-10 years and my body had compensated which explained why I
could still walk OK.

My neurosurgeon did a brilliant job that's why I am here typing away I
suppose.  I had the op in December 1996.  I had my left eye sewn partial
shut as the facial muscle had suffered and I had lost control of the
muscles in the left side of the face.  I was walking if a little unsteady 2
days after the operation.  Two weeks after the op I could pretty much cope
on my own.  5 to 6 months and the face had lifted and some muscle control
returned. 8 months on and some of my eye has been cut open...

(The acoustic nerve was removed thus hearing in the left ear impossible)

OK these are some questions I have

1. I seem to be getting tired all the time and wondered if things like this
are normal?
2. Has a link between glandular fever (I had it at 10) and acoustic
neuroma's been established?
3. Are there any devices to aid recovery?
4. What is the average recovery time of such ops?
5. Is tinitus common after such ops?
6. Tingling in the face normally occurs and I have heard this usually
precedes recovery?
7. Where can I find more information about recovery??  in the UK!
8. Can painkillers adversely affect recovery?  I take one to two Nerofen
Plus a day (max dose 8)
9. Are there any exercises of the face I can do?  I already do some.

OK I know I can ask my neurosurgeon but I would like to hear from other
people or professionals who are interested.

Thanks for taking the time to read my moans and groans



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